Part 4 of 4
‘The gofundme campaign we’re running is a saving grace for us. With Darby not being not been able to work for several months due to a seizure disorder, things have been difficult for us financially, plus the children’s medical needs are not cheap. A lot of things are not covered by our insurance. Darby and I only go out on a date once a year on our anniversary because it’s too expensive to find three babysitters. One sitter cannot watch all three kids at once because that’s unsafe and insane. So, we go out very rarely even though it would be nice to get a break every once in a while. The gofundme campaign has gone a long way to helping to take a little of the weight off our shoulders.
We’ve wondered why we were given our challenges and we sometimes wonder it again and again because there are new challenges that come up…challenges we haven’t figured out yet. Our religious beliefs come to us and confirm that Jackson, Ellie, Ivy, and Jonah were given to us…for us to give them the best and fullest life that we possibly could so that we can return, after this life, and be with them in eternity. We think of it as, ‘they came here to remind us of where we want to go and that we need to do what we’re supposed to do,’ and they give us the drive to do what we’re supposed to do.
We have wonderful church leaders who realize that not everyone comes from the same cookie cutter and that families are different, whether that be two parents or one, or children with special needs or not. Our leaders have been so helpful. When Jackson started in the Primary program, our bishop extended a calling to someone to be an aide to Jackson to help him through Primary and for the time when we’re in church but not together. Now, he’s in the Young Men’s program and the young men there have taken it upon themselves to make sure Jackson is OK…and they’ve done the same thing for Jonah. We’ve been accepted without regard for the trouble the kids cause sometimes. They realize that we’re doing the best we can and, even if it’s easy to be frustrated with something you might not understand, we know that we’re loved and accepted.
At the same time, in spite of the challenges, we wouldn’t change a thing. We might wonder, sometimes, why things are the way they are, but we wouldn’t change a thing. We love how perfect they are in spite of their medical challenges. We’re glad they chose to be with us and we’re proud of who they are…we worry about what their futures will be like when they’re older. We wonder how they will be treated and we’re scared for that but we’re grateful that we’re all together. We’re trying to teach them to embrace the fact that they’re different and that it’s OK to be different. We all have different strengths and weaknesses and, together, we can keep going. Our family diversity is our strength and it helps us to be less judgmental of other people and their weaknesses or strengths. Most of all, we’ve really tried to build on the fact that, whatever happens, we’re always going to be together and look out for each other.’
Dear Salt Lakers!
These are my new friends, Darby, Sarah, Jackson, Ivy, and Jonah. I was awed, amazed, and touched by their story as I hope you will be, too. If you would like to contribute to their gofundme account, their campaign can be found under the gofundme website by typing ‘Cuvelier Kids Medical Necessities.’ Please consider making a contribution to help this very special family. Every little bit helps!